Publicity
Our authors are on a mission to spread awareness, spark conversations, and build community. Whether they’re speaking on podcasts, publishing powerful articles, or showing up at events around the world, their voices are making an impact. Explore the many ways our stories are being shared — and celebrated — across different platforms.
Upcoming Appearances
From book tours to conferences and community events, our writers are out in the world sharing their stories and connecting with readers.
Check out our upcoming appearances and join us on the journey.
PTEn UK & Ireland PAtient Group
Patient Day
Selly Oak, Birmingham, UK
June 29, 2025
Hungtington Society of Canada
National Conference
Toronto, Canada
October 31 – November 1, 2025
Podcasts
Discover the powerful stories behind our books. Tune in to these podcast interviews featuring our incredible writers
on one condition
- Kelly Kearley – PTEN Hamartona Tumor Syndrome
- Jocelyn Wong – Morquio Syndrome
- Kerri Mauer – Myastenia Gravis
- Erin Paterson – Huntington’s Disease
- Jen Cueva – Pulmonary Arterial Hypertension
- Laura Will – Polymicrogyria
- Jenny Jones – Familial Adenomatous Polyposis
- Daniel DeFabio – Menkes Disease
- Joanne Paquette – Ollier Disease
- Kelly Kearley – PTEN Hamartona Tumor Syndrome
- Jocelyn Wong – Morquio Syndrome
- Andrea Sinclair – Polyglandular Autoimmune Syndrome
i don't know how you do it
Episode: Why You Should Buy the Balloon, with Erin Paterson & Laura Will
The Warrior within
Episode: Blending Happiness with Migraine
help4HD
Episode: Bloopy the Alien Learns about HD with Emma and Erin
phAware
Episode: Jen Cueva talks about PH
send sofa
Episode: Kelly Kearley talks about PTEN
help4HD
Episode: HDYO Ambassador – Hannah
Articles & Newsletters
From personal essays and blog posts to features in newsletters and on advocacy websites, our writers are sharing their journeys far and wide. Explore these powerful stories and thought-provoking pieces.
lda research
Article: Positively Rare
By: Erin Paterson
huntington's disease news
Article: Huntington’s caregiver goes from burnout to reclaiming her identity
By: Hannah Remillard
huntington's disease news
Article: Empowering others with Huntington’s through storytelling
By: Erin Paterson
PTEN UK & Ireland Patient Group
Article: Book Review for Positively Rare
By: Ellie Challis
huntington's disease news
Article: My Grandpa inspired me to write a children book about HD
By: Emma Wajswasser
verening van huntington
Article: Books about Hope and Strength in Huntington’s Disease
international huntington association
Article: Twelve-year-old publishes children’s book about Huntington’s
mind over matter therapy
Article: Empowering Stories from the Rare Disease Community
global genes
Global Genes Guide to Grief
By: Global Genes
How Grief and Hope Intertwine: Growing Up With Huntington’s Disease
By: Melissa Boulavsky
My Grandpa, an Alien and Huntington’s Disease
By: Emma Wajswasser
If Only it was that I Overindulged During the Holidays
By: Jen Cueva
Positively Rare, Positively Beautiful
By: Erin Paterson
Learning to Recognize & Find Joy
By: Jenny Jones
Lemonade Community
Contact us
Erin@LemonadeCommunity.com